In this platform research, our focus makes the distinction between ‘kai’ as a culturally defined Māori notion and western interpretations of ‘food’. “He moumou kai, he moumou tāngata” describes a state where our existence and futures as healthy Māori people (Mauri Ora: Human Flourishing) are put at risk because our kai sources (Te Tai Ao: The Natural Environment), including access to kai, growing kai, preparing kai, the lore/law pertaining to kai, and control of kai systems (Whai Rawa: Māori Economies) is diminishing. Without kai or wai the people will perish!
This proposed research will undertake a co-generative process with our community and collaborating researchers to scope and develop specific research questions that would form the basis of individual applications to three funding bodies. However, our meetings to date have broader research questions that have been discussed so far include:
To scope traditional and contemporary understandings of ‘whānau consent’ in regards to genetic, tissue and organ testing, collection, donation and banking.
To understand how whānau go about gaining ‘whānau consent’ and what processes may support these conversations.
To scope ways in which we can present information about what helps and hinders whānau discussion about consent in an interactive format for whānau to view, supporting them through an informed consent process for genetic-related testing, treatment and/or research.